Tomorrow is the 10th annual World RARE Disease Day. Various activities are taking place all over the United States as well as countless locations around the world.
World RARE Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases, in hopes of improving access to treatments and medical representation for individuals with rare diseases and their families. Global Genes is one of the leading rare disease patient advocacy organizations worldwide and a consistent supporter of this important day of awareness. Since 2009, Global Genes and hundreds of patient advocacy organizations around the world have engaged in awareness raising activities developed by Global Genes in support of World Rare Disease Day! (more…)